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The long-term prognosis for HE/SREAT patients is often reported as good in the majority of medical literature, especially with early intervention. Recovery is also dependant on the type (relapsing/remitting or acute onset) and severity of HE/SREAT.

Patients with relapsing, remitting HE/SREAT or who suffer severe residual effects from an acute onset of HE/SREAT may find returning to work difficult if not impossible. Work that requires good communication skills, memory and attention, and the ability to concentrate may be difficult for patients to maintain after the onset of the condition. The risk of seizure in some patients may also make returning to routine activities such as school, work, or tasks around the home particularly difficult as well. 

Patients who are left with lasting neurological deficits may benefit from complementary therapies in addition to their treatment for HE/SREAT such as drugs to treat seizures, tremor, or myoclonus. Additional therapies such as occupational therapy or working with a trained neuropschiatrist may also help some patients in their recovery. These may be of benefit to some but there is no “recipe” for recovery. Keeping the medical team updated on progress and having a strong support network can be extremely helpful in learning to adjust to a life after HE/SREAT diagnosis.

Last edited by Web Team on June 20th, 2016

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

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Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

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Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
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