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The long-term prognosis for HE patients is often reported as good in the medical literature, especially with early intervention.

However, patients with relapsing/remitting HE, or who suffer severe residual effects from an acute onset of HE, may find returning to work difficult if not impossible. Work that requires good communication skills, memory, attention to detail, and the ability to concentrate, may prove especially difficult. The risk of seizure in some patients may also make returning to routine activities such as school, work, or tasks around the home difficult as well.  Driving may be difficult or dangerous for some due to attention deficits and seizure or seizure-like activity.

Patients who are left with lasting neurological deficits may benefit from complementary therapies in addition to the medications used to treat seizures, tremor, or myoclonus. Additional therapies such as occupational therapy or working with a trained neuropsychologist may also help some patients in their recovery.

Although the treatments discussed above may benefit  some, there is no “recipe” for recovery. Keeping a patient’s medical team updated on progress and setbacks, and having a strong support network, can be extremely helpful as a patient learns to adjust to life after a HE diagnosis.


Last edited by Web Team on June 20th, 2016

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.
"Connecting Rare Disease Patients Globally"
"Alone we are rare. Together we are strong.®"

Contact a Family
"For families with disabled children."

Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.