Visit our new website

Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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Finding Out More

A comprehensive list of recent scientific publications regarding HE/SREAT is available under the
Scientific Research tab above.  Research is divided by topic and in some cases, by year published.

You can also find a wealth of information on our YouTube channel and our Google+ collections. In addition, we regularly post useful information on our Facebook fan page, HESA – Hashimoto’s Encephalopathy SREAT Alliance.

In addition to this website, our book, “Understanding Hashimoto’s Encephalopathy,“may be a starting point for individuals, families, and caregivers to learning more about the condition. The book can be purchased from  Please be aware that there are two editions of the book. The first edition has roughly fifty personal narratives written by patients and their loved ones, which describe each person’s symptoms, the search for a diagnosis, and treatments given, as well as residual impacts.  The second edition (2016) offers interviews with numerous treating physicians and researchers regarding their experience with HE; it contains fewer personal narratives from patients.

For those interested in educating themselves and others about the complexity of HE/SREAT and other forms of autoimmune encephalitis, there are multiple informative videos on the Youtube page administered by the Autoimmune Encephalitis Alliance.

Last edited by Web Team on June 20th, 2016

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.
"Connecting Rare Disease Patients Globally"
"Alone we are rare. Together we are strong.®"

Contact a Family
"For families with disabled children."

Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.