Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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Autoimmune encephalitis and me. feat “Heroes” by David Bowie

Autoimmune Encephalitis and Me

Our very own Sally Carty from Massapequa Park talks about her personal experience with autoimmune encephalitis, specifically Hashimoto’s encephalopathy. Two articles were recently published about Sally and her video. The article, “Resident Enters Short Film Competition” published by the Massapequa Observer can be found on their website, http://www.massapequaobserver.com. The other article, “Massapequa Park Resident to Enter World Encephalitis Day Short Film Competition in Effort to Help Spread Awareness”, can be found at the Northwell Health website, https://www.northwell.edu.



 
 

Site Disclaimer


The Hashimoto’s Encephalopathy/SREAT Alliance was created in 2012 and is the 501(c)(3) non-profit organization established to spread awareness and increase understanding of Hashimoto’s Encephalopathy/SREAT while supporting those affected by this illness. We provide links to research into this poorly understood and potentially under-diagnosed condition for the benefit of patients, their families, friends, and caregivers. In addition, we provide resources to help patients and the general public increase their knowledge of HE/SREAT and find help in the diagnosis and management of this condition through self-education.

HESA also administers several Facebook Groups dedicated to supporting families, friends, caregivers, and the inquires from the general public about HE/SREAT. The opinions or actions of individual members of these groups does not necessarily reflect the beliefs or opinions of HESA.

 

Our Disclaimer

This website is not a substitute for independent professional advice. Nothing contained in this site is intended to be used as medical advice. No articles or other content are intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional’s advice.
  
This site does not employ and is not evaluated by a medical professional. Articles and studies are shared for personal reference, not to provide advice, diagnosis, or treatment of any medical condition or suspected medical condition.

While we make very effort to share information and links to sites which contain quality information, the user is solely responsible for determining the relevancy, accuracy, and currency of the information linked to or provided for their personal use. We shall not be held responsible for the contents of links to studies, their errors, omissions, or any malicious software they may contain.

All information is provided for your personal use and research without warranty.

 
 
 
 

Living with Autoimmune Encephalopathy

This video by Scott Foley, interviews patients and family affected by Hashimoto’s Encephalopathy. This cruel condition effects children and adults alike. Symptoms can be progressive or have a slow, sub-acute onset. These symptoms can include the following:

Symptoms:
confusion and disorientation
concentration and memory problems
personality changes
speech difficulties (usually transient)
tremors
muscle jerking (myoclonus)
impaired coordination and balance (ataxia)
headaches
disorientation
seizures or seizure-like events
partial paralysis (transient)
sleep abnormalities
psychosis
coma

 

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Find Our Page On The Mighty

More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.

 

AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.