Our very own Sally Carty from Massapequa Park talks about her personal experience with autoimmune encephalitis, specifically Hashimoto’s encephalopathy. Two articles were recently published about Sally and her video. The article, “Resident Enters Short Film Competition” published by the Massapequa Observer can be found on their website, http://www.massapequaobserver.com. The other article, “Massapequa Park Resident to Enter World Encephalitis Day Short Film Competition in Effort to Help Spread Awareness”, can be found at the Northwell Health website, https://www.northwell.edu.
The Hashimoto’s Encephalopathy/SREAT Alliance was created in 2012 and is the 501(c)(3) non-profit organization established to spread awareness and increase understanding of Hashimoto’s Encephalopathy/SREAT while supporting those affected by this illness. We provide links to research into this poorly understood and potentially under-diagnosed condition for the benefit of patients, their families, friends, and caregivers. In addition, we provide resources to help patients and the general public increase their knowledge of HE/SREAT and find help in the diagnosis and management of this condition through self-education.
HESA also administers several Facebook Groups dedicated to supporting families, friends, caregivers, and the inquires from the general public about HE/SREAT. The opinions or actions of individual members of these groups does not necessarily reflect the beliefs or opinions of HESA.
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This video by Scott Foley, interviews patients and family affected by Hashimoto’s Encephalopathy. This cruel condition effects children and adults alike. Symptoms can be progressive or have a slow, sub-acute onset. These symptoms can include the following:
confusion and disorientation
concentration and memory problems
speech difficulties (usually transient)
muscle jerking (myoclonus)
impaired coordination and balance (ataxia)
seizures or seizure-like events
partial paralysis (transient)