Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
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encephalitis

HESA Helps Promote Encephalitis Research with Funding Pledge to AE Alliance

Chicago, IL, February 6th, 2017:  The Hashimoto’s Encephalopathy SREAT Alliance (HESA) is a 501 (c) (3) non-profit organization, started in 2012 by co-founders, Nicola Nelson and Susan Foley. After both women were affected by the condition commonly known as Hashimoto’s encephalopathy, the women embarked on a mission to collect, archive, and share information on the condition, and offer emotional support to patients, families, and caregivers. This mission was furthered by the publication of the book published in 2013, “Understanding Hashimoto’s Encephalopathy: A Guide for Patients, Families, and Caregivers”, (available on Amazon.com).

 

HESA could not be more proud to contribute a portion of our donations and proceeds from both of our books to help further research into autoimmune encephalitis, and by proxy, Hashimoto’s encephalopathy, through AE Alliance,” said Executive Director, Susan Foley.

 

The AE Alliance is proud of the long-standing relationship with the Hashimoto’s Encephalopathy SREAT Alliance. We are grateful beyond words for HESA’s generosity. This collaboration allows both groups to look anew at imaginative ways to raise awareness on all autoimmune encephalitis fronts, fight this disease, and lessen the suffering of patients and their families,” said John Spencer, Executive Director of the AE Alliance.

The Autoimmune Encephalitis Alliance improves the lives of patients with autoimmune encephalitis by promoting collaboration in clinical and basic research and by creating a community of patients, families, and caregivers so that no one faces autoimmune encephalitis alone.

The AE Alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research, and clinical care. The AE Alliance is a 501(c)(3) non-profit and all services are free of charge. For more information visit www.aealliance.org.

To learn more about the Hashimoto’s Encephalopathy SREAT Alliance and mission, please visit http://hesaonline.org.

A Survivors Chance to Meet Dr. Ava Easton of The Encephalitis Society (UK)

Book launch at The Talbot Hotel in Malton, and chef's kitchen event at Malton Cookery School. Friday 1st April 2016. HARRY ATKINSON

Book launch at The Talbot Hotel in Malton, and chef’s kitchen event at Malton Cookery School. Friday 1st April 2016. HARRY ATKINSON

The great folks at the Encephalitis Society have given us the news that Dr. Ava Easton will be sharing her new book, “Life After Encephalitis – A Narrative Approach“,  at Harvard University, Columbia University, and Mayo Clinic in Rochester, MN.

In a recent conversation with Dr. Easton about our upcoming second edition of “Understanding Hashimoto’s Encephalopathy” (in which Dr. Easton is featured), she shared with us that she and her team will be in the United States from Novermber 14 to the 20th. If you’re in the area and would like to connect for meet-ups with Dr. Easton and her team, you can contact them easily via Twitter at @encephalitis. You can also email them directly from their website at encephalitis.info.

While the above visits to Harvard and Columbia are closed to the public, the Mayo Rochester event will be open to the public. The date and exact details are to be announced. Once we have details of the Mayo Clinic event, we will be sharing our on Facebook, Twitter, and other social media.

Dr. Easton’s book, “Life After Encephalitis – A Narrative Approach“, is available now. You can find out more on The Encephalitis Society website.

Autoimmune encephalitis and me. feat “Heroes” by David Bowie

Autoimmune Encephalitis and Me

Our very own Sally Carty from Massapequa Park talks about her personal experience with autoimmune encephalitis, specifically Hashimoto’s encephalopathy. Two articles were recently published about Sally and her video. The article, “Resident Enters Short Film Competition” published by the Massapequa Observer can be found on their website, http://www.massapequaobserver.com. The other article, “Massapequa Park Resident to Enter World Encephalitis Day Short Film Competition in Effort to Help Spread Awareness”, can be found at the Northwell Health website, https://www.northwell.edu.



 
 

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


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Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


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Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


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