Press Release: HESA Publishes Follow-up to Groundbreaking First Book

WOODSTOCK, IL, May 05, 2017 /24-7PressRelease/ — The Hashimoto’s Encephalopathy SREAT Alliance proudly announces the highly anticipated Understanding Hashimoto’s Encephalopathy 2016 Edition: An Expanded and Updated Guide For Patients, Families, and Caregivers.” This new and expanded second edition includes interviews with the top neurologists in autoimmune neurology from around the world. This edition also brings to light the daily struggles of patients stricken with “Hashimoto’s encephalopathy” (also known as Steroid-Responsive Encephalopathy Associated with Thyroiditis).

The book features a foreword written by Dr. Sarosh R. Irani, the world-renowned consultant neurologist, and clinician-scientist, specializing in autoantibody-mediated diseases of the central nervous system. Dr. Irani has said of the book, “Understanding Hashimoto’s Encephalopathy draws on the experiences and knowledge of patients diagnosed with HE, as well as insights from caregivers and clinicians. It offers guidance for future and current HE sufferers who are coming to terms with their illnesses. This balanced and extensive text was written with great care, as a resource guide for this heterogeneous condition.”

The book also prominently features interviews with twelve clinicians who work directly with patients affected by autoimmune encephalitis and the resulting neurological deficits presented by the condition. In addition to the invaluable insights of these clinicians, the follow-up book continues to focus on patient, family, and caregiver narratives which remain the core of the book. The book is rounded out with additional text describing the condition, a chapter offering support for those who have received a diagnosis of Hashimoto’s encephalopathy/SREAT and providing suggestions for how to move forward, and finally, a robust resource section with an extensive glossary.

“Understanding Hashimoto’s Encephalopathy 2016 Edition: An Expanded and Updated Guide For Patients, Families, and Caregivers” is currently available in softcover and will be released in the Kindle digital book format in May of 2017.

To learn more about this serious condition, you can follow Hashimoto’s Encephalopathy SREAT Alliance on the following social media platforms: Facebook, Twitter, Instagram, LinkedIn, and Pinterest.

Autoimmune Encephalitis: Treatment and Expected Outcomes

This video from Duke University talks about Autoimmune Encephalitis treatment and outcome. The information in this video can also apply to autoimmune encephalopathies, including therapies such as IVIG. It talks as well about treating symptoms such as seizures and neuropsychiatric symptoms.


 

Autoimmune Encephalitis: Patient Perspective

Author and former New York Post writer, Susanah Cahalan, was diagnosed with anti-NMDA receptor encephalitis. This is an acute inflammation of the brain caused by autoimmunity. This diagnosis may also be considered in a differential diagnosis for HE/SREAT and can share symptoms, such as hallucinations and seizures. Ms. Cahalan’s vivid description of her hallucinations may ring with familiarity to patients diagnosed with HE/SREAT as well.

This video comes form Autoimmune Encephalitis Alliance from their Youtube.com channel, Autoimmune Encephalitis Alliance.


 

Dr. Eric Lancaster discusses The uses and misuses of titers in autoimmune encephalitis

Dr. Eric Lancaster
Dr. Eric Lancaster for AE Alliance

In a video hosted by Autoimmune Encephalitis Alliance, Dr. Eric Lancaster talks about antibody titers and it’s uses and misuses in autoimmune encephalitis. The 10+ minute video is hosted on AE Alliance’s Vimeo page which can be found at https://vimeo.com/98041998.