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antibodies

UPENN Publishes Updated List of Known Autoantibodies

As many visitors to our website may already know, University of Pennsylvania has their own clinic manned by Doctors Eric Lancaster and Josep Dalmau. This clinic has it’s own proprietary laboratory which using immunohistochemistry to identify serum and/or CSF samples that are shown to have immunoreactivity with the brain. We are told that these are most often the patients that receive an autoimmune encephalitis/encephalopathy diagnosis from Dr. Lancaster and Dr. Dalmau’s team of doctors at UPENN.

This list may be a great resource tool for patients, families, and caregivers who wish to learn more about autoimmune encephalitis/encephalopathy and the diagnostic procedure at UPENN.

We encourage you to read more on the UPENN website [https://www.med.upenn.edu/autoimmuneneurology/classification.html].

Autoimmune Encephalitis: Patient Perspective

Author and former New York Post writer, Susanah Cahalan, was diagnosed with anti-NMDA receptor encephalitis. This is an acute inflammation of the brain caused by autoimmunity. This diagnosis may also be considered in a differential diagnosis for HE/SREAT and can share symptoms, such as hallucinations and seizures. Ms. Cahalan’s vivid description of her hallucinations may ring with familiarity to patients diagnosed with HE/SREAT as well.

This video comes form Autoimmune Encephalitis Alliance from their Youtube.com channel, Autoimmune Encephalitis Alliance.


 

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.