HESA (Hashimoto’s Encephalopathy SREAT Alliance), the Anti-NMDA Receptor Encephalitis Foundation, Inc. (Canada), Encephalitis Global, and the Antibody-Negative Autoimmune Encephalitis Facebook group are proud to announce a groundbreaking Symposium to be held on April 6, 2019 at Weill Cornell Medical College, Cornell University in New York, NY, titled: “Autoimmune Encephalitis: A Bridge Between Neurology and Psychiatry.”
Far too many HE/AE patients have been misdiagnosed with psychotic disorders, or just misdiagnosed altogether, wasting valuable treatment time and leading to sub-optimal recovery, or even death. This symposium brings together experts familiar with the troubling fact that autoimmune encephalitis is often misdiagnosed as psychiatric illness because of its presenting symptoms, and seeks to enhance the dialogue between the disciplines of neurology and psychiatry, increasing physician recognition of the need to test for AE when a patient presents with sudden changes in mental status. It will be filmed and available to view later on social media. The speakers are all experts in their fields, and will participate in Q&A sessions.
Donations for this very important symposium are being taken at HESA’s Website. www.hesaonline.org. All donations marked “Symposium” will go directly to the costs of the symposium.
This video from Duke University talks about Autoimmune Encephalitis treatment and outcome. The information in this video can also apply to autoimmune encephalopathies, including therapies such as IVIG. It talks as well about treating symptoms such as seizures and neuropsychiatric symptoms.
Author and former New York Post writer, Susanah Cahalan, was diagnosed with anti-NMDA receptor encephalitis. This is an acute inflammation of the brain caused by autoimmunity. This diagnosis may also be considered in a differential diagnosis for HE/SREAT and can share symptoms, such as hallucinations and seizures. Ms. Cahalan’s vivid description of her hallucinations may ring with familiarity to patients diagnosed with HE/SREAT as well.
This video by Scott Foley, interviews patients and family affected by Hashimoto’s Encephalopathy. This cruel condition effects children and adults alike. Symptoms can be progressive or have a slow, sub-acute onset. These symptoms can include the following:
confusion and disorientation
concentration and memory problems
speech difficulties (usually transient)
muscle jerking (myoclonus)
impaired coordination and balance (ataxia)
seizures or seizure-like events
partial paralysis (transient)