Chicago, IL, February 6th, 2017: The Hashimoto’s Encephalopathy SREAT Alliance (HESA) is a 501 (c) (3) non-profit organization, started in 2012 by co-founders, Nicola Nelson and Susan Foley. After both women were affected by the condition commonly known as Hashimoto’s encephalopathy, the women embarked on a mission to collect, archive, and share information on the condition, and offer emotional support to patients, families, and caregivers. This mission was furthered by the publication of the book published in 2013, “Understanding Hashimoto’s Encephalopathy: A Guide for Patients, Families, and Caregivers”, (available on Amazon.com).
“HESA could not be more proud to contribute a portion of our donations and proceeds from both of our books to help further research into autoimmune encephalitis, and by proxy, Hashimoto’s encephalopathy, through AE Alliance,” said Executive Director, Susan Foley.
“The AE Alliance is proud of the long-standing relationship with the Hashimoto’s Encephalopathy SREAT Alliance. We are grateful beyond words for HESA’s generosity. This collaboration allows both groups to look anew at imaginative ways to raise awareness on all autoimmune encephalitis fronts, fight this disease, and lessen the suffering of patients and their families,” said John Spencer, Executive Director of the AE Alliance.
The Autoimmune Encephalitis Alliance improves the lives of patients with autoimmune encephalitis by promoting collaboration in clinical and basic research and by creating a community of patients, families, and caregivers so that no one faces autoimmune encephalitis alone.
The AE Alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research, and clinical care. The AE Alliance is a 501(c)(3) non-profit and all services are free of charge. For more information visit www.aealliance.org.
To learn more about the Hashimoto’s Encephalopathy SREAT Alliance and mission, please visit http://hesaonline.org.
Author and former New York Post writer, Susanah Cahalan, was diagnosed with anti-NMDA receptor encephalitis. This is an acute inflammation of the brain caused by autoimmunity. This diagnosis may also be considered in a differential diagnosis for HE/SREAT and can share symptoms, such as hallucinations and seizures. Ms. Cahalan’s vivid description of her hallucinations may ring with familiarity to patients diagnosed with HE/SREAT as well.
This video comes form Autoimmune Encephalitis Alliance from their Youtube.com channel, Autoimmune Encephalitis Alliance.
In a video hosted by Autoimmune Encephalitis Alliance, Dr. Eric Lancaster talks about antibody titers and it’s uses and misuses in autoimmune encephalitis. The 10+ minute video is hosted on AE Alliance’s Vimeo page which can be found at https://vimeo.com/98041998.