Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
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Autoimmune Encephalitis: Treatment and Expected Outcomes

Published June 4, 2015 | By Nicola

This video from Duke University talks about Autoimmune Encephalitis treatment and outcome. The information in this video can also apply to autoimmune encephalopathies, including therapies such as IVIG. It talks as well about treating symptoms such as seizures and neuropsychiatric symptoms.


 

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Autoimmune Encephalitis: Patient Perspective

Published June 4, 2015 | By Nicola

Author and former New York Post writer, Susanah Cahalan, was diagnosed with anti-NMDA receptor encephalitis. This is an acute inflammation of the brain caused by autoimmunity. This diagnosis may also be considered in a differential diagnosis for HE/SREAT and can share symptoms, such as hallucinations and seizures. Ms. Cahalan’s vivid description of her hallucinations may ring with familiarity to patients diagnosed with HE/SREAT as well.

This video comes form Autoimmune Encephalitis Alliance from their Youtube.com channel, Autoimmune Encephalitis Alliance.


 

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Living with Autoimmune Encephalopathy

Published June 3, 2015 | By Nicola
This video by Scott Foley, interviews patients and family affected by Hashimoto’s Encephalopathy. This cruel condition effects children and adults alike. Symptoms can be progressive or have a slow, sub-acute onset. These symptoms can include the following:

Symptoms:
confusion and disorientation
concentration and memory problems
personality changes
speech difficulties (usually transient)
tremors
muscle jerking (myoclonus)
impaired coordination and balance (ataxia)
headaches
disorientation
seizures or seizure-like events
partial paralysis (transient)
sleep abnormalities
psychosis
coma

 

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.