Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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Finding Clinical Trials

Are you interested in helping researchers study Hashimoto’s encephalopathy or related conditions? 

The National Institutes of Health has a searchable registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov provides information about a trial’s purpose, who may participate, locations, and phone numbers for more details. 

 More about NIH clinical trials can be found at their page, NIH Clinical Trials and You

If you want to learn more about what clinical trials are, and why you might want to participate, you can visit the NIH website page, NIH Clinical Research and You: The Basics. To search for HE/SREAT clinical trials, you can search their website by visiting http://clinicalstudies.info.nih.gov/

You may also wish to consider registering with the NIH – funded National Registry of Volunteers to be matched with researchers conducting future studies on your physical conditions.  To learn more, go visit their website ResearchMatch.  





Last edited by Web Team on February 29th, 2016

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.