Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
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APPLYING FOR DISABILITY ASSISTANCE (United States)

“Social Security”

Many patients with Hashimoto’s Encephalopathy experience severe neurological impairments, causing them to suffer complete disability. Even after treatment, some symptoms of HE may persist or even worsen, or patients may experience additional new symptoms or difficulties that negatively affect their quality of life and daily function. In the United States, the Social Security Administration provides disability benefits for those who are completely unable to work due to “a medical condition that is expected to last at least one year or result in death.”

The following links provide helpful information for HE/SREAT patients in the United States who have become too disabled to work and wish to seek disability benefits from the Social Security Administration.

Disability Evaluation Under Social Security
Part I – General Information

Disability Evaluation Under Social Security
14.00 Immune System Disorders – Adult

Disability Evaluation Under Social Security
Part II – Evidentiary Requirements

Disability-Related Publications Available Online from the SSA

Also, this link from Money Saving Expert may be helpful for those seeking an easy-to-understand guide to the process: https://www.moneysavingpro.com/blog/ultimate-guide-to-social-security-disability-benefits/

The following links provide additional resources for patients navigating Social Security Benefits in the United States, which are specific to brain injury or neurological diseases:

Note: Although it is not necessary to hire an attorney to apply for benefits, many HE patients find that they must hire an attorney in order to be successful in the process.  Other patients, however, have been successful without hiring an attorney.

APPLYING FOR DISABILITY ASSISTANCE (United Kingdom)

“Personal Independence Payment”

On the 8th April 2013, the Personal Independence Payment (PIP) replaced Disability Living Allowance (DLA) for people aged 16 to 64 with a health condition or disability in the United Kingdom.  Anyone over the age of 16 but under the age of 65 will need to apply for PIP instead of DLA.

Gov.uk  states that a new DLA claim can be made if you are claiming for someone under the age of 16 (known as “DLA for Children“) .

You may be able to claim if you are over 65 years of age.

For UK patients diagnosed with HE/SREAT (or other autoimmune “encephalitis” or encephalopathies), you may find additional information and guidance by contacting Citizens Advice via their website or telephone.

 For those in the UK  and Northern Ireland, you may contact Citizens Advice on 03454 04 05 06. Welsh-speaking patients can contact Citizens Advice at 0354 04 05 05. Telephone lines are open from 9 am to 5 pm GMT. Please consult their website, https://www.citizensadvice.org.uk for more information on their hours of operation and additional contact details.

Overview of the PIP system from Gov.UK

 APPLYING FOR DISABILITY ASSISTANCE (Canada)

“Pension Plan Disability Benefits”

Canada has a system that is similar to the US Social Security system, called “Canada Pension Plan” (CPP). This is a taxable benefit to those who have paid into CPP throughout their working life (much like Social Security) and who are unable to work at any job due to disability. For more information on the terms of CPP, please visit the Disability Benefit page on www.servicecanada.gc.ca.

You can find out more about CPP benefits via the links below.

Disability Benefits – Canada

Sickness Benefits Information

 

Last edited by Web Team on July 8th, 2015

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


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Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


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NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


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