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Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
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For Families

One of HESA’s key goals is to provide an online presence where patients, families, and caregivers can connect and share information about medical treatment, care, services, and emotional support. We welcome families to our Facebook groups with open arms, and we encourage you to connect with us on social media.

On this page we share a few links that may help those with a loved one diagnosed with HE/SREAT to cope during what can be a stressful and difficult time.

Meal Train helps to organize meals for a friend after birth, surgery, or illness.

Miracle Flights is the leading health and welfare flight organization in the country, and provides financial assistance for medical travel in the form of commercial airline tickets enabling children to reach the out-of-state medical expertise they desperately need.

Contact a Family, for families with disabled children. (United Kingdom)

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Find Our Page On The Mighty

More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.


AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.
"Connecting Rare Disease Patients Globally"
"Alone we are rare. Together we are strong.®"

Contact a Family
"For families with disabled children."

Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.