Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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For Clinicians

Clinicians interested in learning more about HE/SREAT and autoimmune encephalitis/encephalopathy are encouraged to watch the following video from Grand Rounds at Duke University.  Although a substantial portion of this 48 minute presentation focuses on anti-NMDA Receptor encephalitis, much of the material is equally applicable to HE/SREAT, and in fact the presenters make very clear that most of the material is applicable to all varieties of autoimmune encephalitis.

The first 18 minutes of the video consist of a book reading by Susannah Cahalan, author of the best seller “Brain on Fire” in which the author vividly describes her experience of being stricken with autoimmune encephalitis.

Beginning at minute 18, the video shifts to a presentation geared toward educating clinicians.

From approximately minute 18 to approximately minute 26, the presenter focuses on diagnosis.

From approximately minute 26 to approximately minute 31 the presenter discusses treatment options.

From approximately minute 31 to 37, the presenter discusses problems of bias that complicate diagnosis.

Beginning at about minute 37, the presenters take questions from the audience.

The Presenters featured in the video are, in order of their presentations:

Susannah Cahalan, author of “Brain on Fire: My month of madness

Dr. William Gallentine, Assistant Professor, Pediatric Neurology, Duke University Medical Center

Dr. Heather Van Mater, Assistant Professor, Pediatric Rheumatology, Duke University Medical Center

Dr. Xavier Preud’Homme, Assistant Professor, Internal Medicine and Psychiatry, Duke University Medical Center.

 

 

 

 

 

 

 

 

 

Further Understanding Patient Experiences

Clinicians may also be interested in the book, “Understanding Hashimoto’s Encephalopathy – 2016 Edition” now available for sale at Amazon.com in hard-copy or as an e-book. The book includes interviews with many clinicians who treat or research HE.

 

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.