Clinicians interested in learning more about HE/SREAT and autoimmune encephalitis/encephalopathy are urged to watch the following video from Grand Rounds at Duke University. Although a substantial portion of this 48 minute presentation discusses anti-NMDA Receptor encephalitis, much of the material is nevertheless equally applicable to HE/SREAT, and in fact the presenters make very clear that most of the material is applicable to all varieties of autoimmune encephalitis.
The first 18 minutes of the video consist of a book reading by Susannah Cahalan, author of the best seller “Brain on Fire” in which the author vividly describes her experience of being stricken with autoimmune encephalitis. Beginning at minute 18, the video shifts to a presentation geared toward educating clinicians. From approximately minute 18 to approximately minute 26, the presenter focuses on diagnosis. From approximately minute 26 to approximately minute 31 the presenter discusses treatment options. From approximately minute 31 to 37, the presenter discusses problems of bias that complicate diagnosis. Beginning at about minute 37, the presenters take questions from the audience.
The Presenters featured in the video are, in order of their presentations:Susannah Cahalan, author of “Brain on Fire: My month of madness” Dr. William Gallentine, Assistant Professor, Pediatric Neurology, Duke University Medical Center Dr. Heather Van Mater, Assistant Professor, Pediatric Rheumatology, Duke University Medical Center Dr. Xavier Preud’Homme, Assistant Professor, Internal Medicine and Psychiatry, Duke University Medical Center.
Further Understanding Patient Experiences
Clinicians may also be interested in the book, “Understanding Hashimoto’s Encephalopathy: A Guide for Patients, Families and Caregivers“ now available for sale at Amazon.com in hard-copy or as an e-book for Kindle reader.
HESA is currently in the process of preparing the manuscript for the second edition of its groundbreaking book, “Understanding Hashimoto’s Encephalopathy” (2013). The new edition will be greatly expanded, particularly in terms of providing the latest scientific research regarding HE/SREAT, interviews with experts in the field, and patient narratives that describe individual patient experiences with this perplexing and often debilitating disease. In addition, the book will provide an exhaustive listing of peer-reviewed articles about HE/SREAT published over the last ten years.
HESA’s goal in expanding the first edition of its book is to help those with HE/SREAT: (1) find the latest scientific information; (2) identify physicians with HE experience; and (3) locate resources and support systems to help them cope with this disease. In addition, the new edition is designed to assist clinicians who encounter patients with suspected HE/SREAT in finding useful information and referral sources.
For clinicians with experience in the diagnosis, treatment, or management of HE/SREAT and wish to be intereviewed for the upcoming book, please contact our webmaster.
Last edited by Web Team on February 29th, 2016