Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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For those who want more in-depth information, we provide the a listing of online resources which will allow visitors to our website to delve as deeply into HE/SREAT as they wish.

In the previous edition of “Understanding Hashimoto’s Encephalopathy”, we included a lengthy list of scientific studies for patients, families, and caregivers to learn more about HE/SREAT from a more clinical perspective. You can now find all these links and more, updated regularly, on this website under “Scientific Research”.

In addition to these scientific studies, you can easily access more resources such as those for patients, families, clinicians, and those who have not yet reached a diagnosis. These can all be found on our website under “Resources.”

In this chapter, you will find lists to online groups and communities of HE patients and websites that offer additional information as well as organizations that you may wish to contact for more information on encephalitis/encephalopathy or for support.

Last edited by Web Team on June 20th, 2016

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.

"Connecting Rare Disease Patients Globally"

"Alone we are rare. Together we are strong.®"

Contact a Family
"For families with disabled children."

Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.