Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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Second Edition

Understanding Hashimoto’s Encephalopathy 2016 Edition: An Expanded and Updated Guide for Patients, Families, and Caregivers is the second book HESA has written about this rare autoimmune disease. Hashimoto’s encephalopathy (“HE”), often referred to as Steroid Responsive Encephalopathy Associated with Thyroiditis (“SREAT”), strikes people of all ages, in all walks of life, and takes a devastating toll on patients and their loved ones. This poorly understood disease continues to puzzle physicians and researchers around the globe. As a result, patients with HE often remain undiagnosed for months or even years, if they are lucky enough to be diagnosed at all.

In this book, readers will learn the symptoms, diagnostic criteria and challenges, and treatment options for HE, as well as the scientific theories regarding the causes and diagnostic markers of the disease. Throughout the book the reader will find citations and Internet links to scientific articles about HE/SREAT published between 2010 and 2016. New in this expanded edition are interviews with some of the most highly respected clinicians in the world in which they share their knowledge and experience with both researching HE and treating patients with the disease. Additionally, this edition includes tips for living with HE, and an extensive glossary of related terms, acronyms, and medications.

At the heart of the book, as was in the first book, are first-person narratives written by HE patients and caregivers around the world, which provide the reader with a glimpse into daily life with the debilitating effects of HE. Patients describe their symptoms, their struggle to find a diagnosis, and their treatment experiences. A separate section is devoted to the stories of pediatric HE/SREATpatients, as told by their parents.

Understanding Hashimoto’s Encephalopathy offers a comprehensive picture of HE/SREAT that is helpful for physicians, while written in language accessible to the layperson.

DISCLAIMER: As with all books, Understanding Hashimoto’s Encephalopathy is not intended to be and should not be considered to constitute medical advice.

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.