“Understanding Hashimoto’s Encephalopathy” (original edition)

Understanding Hashimoto's Encephalopathy: A Guide for Patients, Families, and Caregivers - Featuring the Stories of HE Patients from Around the World book cover

HESA published the first-ever book devoted to Hashimoto’s Encephalopathy, also known as SREAT (Steroid Responsive Encephalopathy Associated with Thyroiditis). The title of the book was “Understanding Hashimoto’s Encephalopathy: A Guide for Patients, Families, and Caregivers – Featuring the Stories of HE Patients from Around the World.

The book provided medical information about HE/SREAT, a list of almost 100 recently published scientific papers and case studies concerning HE/SREAT, and first-person narratives submitted by 48 HE/SREAT patients and their loved ones. These patient narratives came from around the world and tell of patients’ own experiences, including their symptoms, the search for a diagnosis, and of course, the treatments they have tried and their responses to various treatments.

Stories run the gamut from those of young children whose parents faced the desperate struggle to save their children’s lives, to those of elderly persons mistakenly believed to be suffering from age-related dementia. There are success stories that bring hope for the future, as well as tragic stories of those who lost their battle with HE/SREAT. Patients were promised that their stories would remain in their own words, with editing only occurring when it was absolutely necessary for clarity.

The original edition was replaced by the second (2016) edition, which is available for purchase on Amazon.com at:   https://www.amazon.com/Understanding-Hashimotos-Encephalopathy-2016-Caregivers-ebook/dp/B072BWMPRY/ref=sr_1_1?ie=UTF8&qid=1537890161&sr=8-1&keywords=understanding+hashimotos+encephalopathy

The original edition can still be purchased in e-reader format from Amazon.com, however HESA recommends the 2016 edition which provides substantially more information.

Last edited by Web Team on September 25, 2018