Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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Informational Videos

Epilepsy Autoimmune Evaluation

This video comes from Mayo Clinic’s YouTube page, Mayo Medical Laboratories.

The new Epilepsy Autoimmune Evaluation is now available from Mayo Medical Laboratories. In this video, Sean Pittock, M.D., discusses what providers should know about autoimmune dementia, the testing approach, as well as interpretation, follow-up and additional considerations once the test has been ordered.


Autoimmune Diseases – Causes, Symptoms, Treatments & More…

A quick animated video giving a brief overview of autoimmune diseases, their symptoms, and treatment. It is not specific to any one autoimmune condition. This could be informative when beginning to learn about autoimmune disease and helping family and friends get a brief understanding of autoimmunity.

You can also find this video and others about autoimmune diseases on you YouTube.com playlist, “Other Autoimmune Conditions/Symptoms“.


 

Living with Autoimmune Encephalopathy

This video by Scott Foley, interviews patients and family affected by Hashimoto’s Encephalopathy. This cruel condition effects children and adults alike. Symptoms can be progressive or have a slow, sub-acute onset. These symptoms can include the following:

Symptoms:
confusion and disorientation
concentration and memory problems
personality changes
speech difficulties (usually transient)
tremors
muscle jerking (myoclonus)
impaired coordination and balance (ataxia)
headaches
disorientation
seizures or seizure-like events
partial paralysis (transient)
sleep abnormalities
psychosis
coma

 

Dr. Eric Lancaster discusses The uses and misuses of titers in autoimmune encephalitis

Dr. Eric Lancaster

Dr. Eric Lancaster for AE Alliance

In a video hosted by Autoimmune Encephalitis Alliance, Dr. Eric Lancaster talks about antibody titers and it’s uses and misuses in autoimmune encephalitis. The 10+ minute video is hosted on AE Alliance’s Vimeo page which can be found at https://vimeo.com/98041998.

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Find Our Page On The Mighty

More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.

 

AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.