As folks in our support forum may know, we are happy to work with The Cambria Lord Foundation on their #Wear4Rare365 campaign this year. The campaign seeks to create a national (United States) emergency room database, giving ER doctors around the U.S. access to rare disease treatment protocols.
We encourage our #HEFamily and other autoimmune encephalitis patients to get involved either by joining our #Wear4Rare365 day by submitting your story or by contacting the appropriate autoimmune encephalitis group working with The Cambria Lord Foundation.
Our #Wear4Rare365 awareness day will co-incide with our annual #Dazzle4Rare day on August 18th, 2017.
We look forward to hearing from as many of you as possible to help accomplish this amazing and potentially life-saving goal! If you’d like to get involved, you can email HESA via our “contact” page.