HESA Awareness Ribbon

HESA Working with The Cambria Lord Foundation for #Wear4Rare365 in 2017

As folks in our support forum may know, we are happy to work with The Cambria Lord Foundation on their #Wear4Rare365 campaign this year. The campaign seeks to create a national (United States) emergency room database, giving ER doctors around the U.S. access to rare disease treatment protocols.

We encourage our #HEFamily and other autoimmune encephalitis patients to get involved either by joining our #Wear4Rare365 day by submitting your story or by contacting the appropriate autoimmune encephalitis group working with The Cambria Lord Foundation.

Our #Wear4Rare365 awareness day will co-incide with our annual #Dazzle4Rare day on August 18th, 2017.

We look forward to hearing from as many of you as possible to help accomplish this amazing and potentially life-saving goal! If you’d like to get involved, you can email HESA via our “contact” page.

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