Visit our new website

Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
Follow us on Facebook, Twitter, LinkedIn, Pinterest, and Instagram!

HESA Working with The Cambria Lord Foundation for #Wear4Rare365 in 2017

As folks in our support forum may know, we are happy to work with The Cambria Lord Foundation on their #Wear4Rare365 campaign this year. The campaign seeks to create a national (United States) emergency room database, giving ER doctors around the U.S. access to rare disease treatment protocols.

We encourage our #HEFamily and other autoimmune encephalitis patients to get involved either by joining our #Wear4Rare365 day by submitting your story or by contacting the appropriate autoimmune encephalitis group working with The Cambria Lord Foundation.

Our #Wear4Rare365 awareness day will co-incide with our annual #Dazzle4Rare day on August 18th, 2017.

We look forward to hearing from as many of you as possible to help accomplish this amazing and potentially life-saving goal! If you’d like to get involved, you can email HESA via our “contact” page.

Giving Assistant

Donate to HESA via Giving Assistant when you shop online.


Find Our Page On The Mighty

More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.


AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.
"Connecting Rare Disease Patients Globally"
"Alone we are rare. Together we are strong.®"

Contact a Family
"For families with disabled children."

Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.