Autoimmune Encephalitis Symposium – April 6, 2019 – Weill Cornell Medical College, New York, NY

HESA (Hashimoto’s Encephalopathy SREAT Alliance), the Anti-NMDA Receptor Encephalitis Foundation, Inc. (Canada), Encephalitis Global, and the Antibody-Negative Autoimmune Encephalitis Facebook group are proud to announce a groundbreaking Symposium to be held on April 6, 2019 at Weill Cornell Medical College, Cornell University in New York, NY,  titled: “Autoimmune Encephalitis: A Bridge Between Neurology and Psychiatry.” 

Far too many HE/AE patients have been misdiagnosed with psychotic disorders, or just misdiagnosed altogether, wasting valuable treatment time and leading to sub-optimal recovery, or even death.  This symposium brings together experts familiar with the troubling fact that autoimmune encephalitis is often misdiagnosed as psychiatric illness because of its presenting symptoms, and seeks to enhance the dialogue between the discipline of neurology and psychiatry, increasing physician recognition of the need to test for AE when a patient presents with sudden changes in mental status. It will be filmed and available to view later on social media. The speakers are all experts in their fields, and will participate in Q&A sessions.

Donations for this very important symposium are being taken at HESA’s Website. www.hesaonline.org. All donations marked “Symposium” will go directly to the costs of the symposium.  

HESA Helps Promote Encephalitis Research with Funding Pledge to AE Alliance

Chicago, IL, February 6th, 2017:  The Hashimoto’s Encephalopathy SREAT Alliance (HESA) is a 501 (c) (3) non-profit organization, started in 2012 by co-founders, Nicola Nelson and Susan Foley. After both women were affected by the condition commonly known as Hashimoto’s encephalopathy, the women embarked on a mission to collect, archive, and share information on the condition, and offer emotional support to patients, families, and caregivers. This mission was furthered by the publication of the book published in 2013, “Understanding Hashimoto’s Encephalopathy: A Guide for Patients, Families, and Caregivers”, (available on Amazon.com).

 

HESA could not be more proud to contribute a portion of our donations and proceeds from both of our books to help further research into autoimmune encephalitis, and by proxy, Hashimoto’s encephalopathy, through AE Alliance,” said Executive Director, Susan Foley.

 

The AE Alliance is proud of the long-standing relationship with the Hashimoto’s Encephalopathy SREAT Alliance. We are grateful beyond words for HESA’s generosity. This collaboration allows both groups to look anew at imaginative ways to raise awareness on all autoimmune encephalitis fronts, fight this disease, and lessen the suffering of patients and their families,” said John Spencer, Executive Director of the AE Alliance.

The Autoimmune Encephalitis Alliance improves the lives of patients with autoimmune encephalitis by promoting collaboration in clinical and basic research and by creating a community of patients, families, and caregivers so that no one faces autoimmune encephalitis alone.

The AE Alliance strives to find a cure for autoimmune encephalitis through multi-disciplinary, collaborative research, and clinical care. The AE Alliance is a 501(c)(3) non-profit and all services are free of charge. For more information visit www.aealliance.org.

To learn more about the Hashimoto’s Encephalopathy SREAT Alliance and mission, please visit http://hesaonline.org.

Breathe Through H E by Lizzie Kehr

A video made by a young woman in Australia with HE/SREAT for the 2016 World Encephalitis Day contest held by the Encephalitis Society. We are happy to share that Lizzie Kehr’s video won the short film contest with over 500 votes.

You can see other entries into the contest by visit the Encephalitis Society website, http://www.encephalitis.info.

 

 

 

Autoimmune encephalitis and me. feat “Heroes” by David Bowie

Autoimmune Encephalitis and Me

Our very own Sally Carty from Massapequa Park talks about her personal experience with autoimmune encephalitis, specifically Hashimoto’s encephalopathy. Two articles were recently published about Sally and her video. The article, “Resident Enters Short Film Competition” published by the Massapequa Observer can be found on their website, http://www.massapequaobserver.com. The other article, “Massapequa Park Resident to Enter World Encephalitis Day Short Film Competition in Effort to Help Spread Awareness”, can be found at the Northwell Health website, https://www.northwell.edu.