Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon

"I believe you."

Board of Directors

Published August 14, 2016 | By WebTeam

The purposes for which the non-profit exists are:

Exclusively charitable, educational, and scientific within the meaning of Sec. 501(c)(3) of the Internal Revenue Code of 1986, as amended (the “Code”), or the corresponding provision of any future United States Internal Revenue law […]

To find out more about each member, please click their name to be taken to their individual LinkedIn profile.

Executive Director – Susan Foley
Vice President – Sally Carty
Secretary – Martha Myers
Technical Director – Dale D. Hunter, Ph.D., J.D.
Board Member – Nicola Egoroff Nelson
Board Member – Scott Foley

Posted in Site Information | Tagged HESA, Nicola Nelson, Susan Foley

AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.

RareConnect.org
"Connecting Rare Disease Patients Globally"

RareDisesases.org
"Alone we are rare. Together we are strong.®"

Contact a Family
"For families with disabled children."

Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.