Board of Directors, Officers, and Volunteer Staff

To find out more, click the person’s name to be taken to their individual LinkedIn profile.

Specialized Volunteers


Contact info:

HESA is a volunteer-staffed organization and we are unable to address questions about HE/SREAT via email.  We cannot provide medical or treatment advice.  Please feel free to contact us via our Facebook groups, or through our Twitter account.

HESA’s primary Facebook group can be found at:

HESA’s Twitter account can be found at:

If you are experiencing an emergency, please contact your local emergency services. If your inquiry is of a medical nature, please contact your family physician or general practitioner for evaluation. HESA recommends finding an immunoneurologist if you suspect you have HE or other form of AE.


HESA is a 501c(3) nonprofit corporation