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Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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Board of Directors, Officers, and Volunteer Staff

To find out more, click the person’s name to be taken to their individual LinkedIn profile.

Specialized Volunteers


Contact info:

HESA is a volunteer-staffed organization and we are unable to address questions about HE/SREAT via email.  We cannot provide medical or treatment advice.  Please feel free to contact us via our Facebook groups, or through our Twitter account.

HESA’s primary Facebook group can be found at:

HESA’s Twitter account can be found at:

If you are experiencing an emergency, please contact your local emergency services. If your inquiry is of a medical nature, please contact your family physician or general practitioner for evaluation. HESA recommends finding an immunoneurologist if you suspect you have HE or other form of AE.


HESA is a 501c(3) nonprofit corporation

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Find Our Page On The Mighty

More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.


AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.

The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."

Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."

Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.
"Connecting Rare Disease Patients Globally"
"Alone we are rare. Together we are strong.®"

Contact a Family
"For families with disabled children."

Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.

NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.

HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.