Understanding Hashimoto's Encephalopathy 2016 Edition:
An Expanded and Updated Guide For Patients, Families, and Caregivers
– Now Available on Amazon
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WHO ARE WE?

The Hashimoto’s Encephalopathy SREAT Alliance (“HESA”)  is a 501(c)(3) nonprofit organization formed in 2012 to collect, archive, and share information about Hashimoto’s Encephalitis/Encephalopathy (“HE”), also known as Steroid Responsive Encephalopathy Associated with Thyroiditis (“SREAT”) with the public and medical professionals.  HE is one of the sero-negative forms of Autoimmune Encephalitis/Encephalopathy (“AE”), meaning that the specific autoantibody that wreaks havoc on the brains of these AE patients has not yet been identified in the laboratory.  At least 17 autoantibodies that can cause AE have been identified since 2006.

HESA (image)

“The Hashimoto’s Encephalopathy SREAT Alliance is a 501(c)(3) nonprofit organization formed in 2012.”

HESA coordinates with other nonprofit organizations around the world, including E-Global, the Autoimmune Encephalitis Alliance,the Anti NMDA Receptor Encephalitis Foundation (Canada) and the Encephalitis Society (UK), to share scientific information, administer and contribute to online support communities for patients and their loved ones, provide speakers for relevant conferences and seminars, and generate funding for research. We appreciate your tax-deductible donations which further this vital work. As noted above, on April 6, 2019, HESA will be co-sponsoring a Symposium for medical professionals, to be held at Weill Cornell Medical School in NY, NY. The Symposium will focus on the problem of misdiagnosis that plagues AE patients because of the psychiatric symptoms that are a hallmark of the disease.

PLEASE NOTE:

This website is not a substitute for professional advice, and the content here is not intended for use in diagnosing, curing, or preventing disease. The site does not employ and is not overseen by medical professionals. Articles and studies listed here are intended solely for personal use and reference.  

Although you will find a great deal of information about HE/SREAT on this website, HESA cannot provide medical advice. If you have HE/SREAT, or think you may have it, consult a qualified neurologist, preferably one with experience addressing immune-mediated illness. 

HESA cannot respond to individual inquiries via this website, but instead encourages those interested in learning more to visit the HESA Facebook communities. There, questions can be posed to other community members, and individual messages can be sent to HESA administrators via “FB Messenger.”  (See the Resources tab for links to the HESA Facebook communities.)

HESA is not responsible for the contents of links to studies, their errors, omissions, or any malicious software they may contain.

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AE Alliance
"The Autoimmune Encephalitis Alliance promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone.


The Encephalitis Society
"The Encephalitis Society is an International organization providing information and support for all causes of Encephalitis."


Encephalitis Global
"Encephalitis Global is a U.S.A. 501(c)(3) non-profit organization formed in 2005 as an alliance connecting encephalitis survivors and caregivers around the world."


Mark2Cure
Scientific literature is growing at a rate of more than 2 new articles every single minute. It is impossible for scientists to consume and understand the rapidly expanding ocean of biomedical literature. You can help biomedical researchers find the information they need to discover cures faster.


RareConnect.org
"Connecting Rare Disease Patients Globally"


RareDisesases.org
"Alone we are rare. Together we are strong.®"


Contact a Family
"For families with disabled children."


Madison's Foundation Provides information about rare diseases and connects parents whose children have the same rare disease.


NIH Health Hotline
Toll-free numbers from the National Library of Medicine's Health Hotlines Database.


HE Notebook - Wordpress Site
A great blog of an HE patient with a trove of information, personal stories, and links to medical studies.

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